SMDI International


P.O. Box 479, Bridgewater, Nova Scotia, Canada B4V 2X6
Tel: (902) 685-3961 Fax: (902) 685-3962
e-mail: smdi@auracom.com

The Society's Web Site and semi-annual Newsletters will specialize in the promotion of Muscular Dystrophy Associations and Allied disorders organizations and of health related sites as resources to help people help themselves who are concerned with these neuromuscular disorders. The Society tries to be open and unbiased to muscular dystrophy and allied disorder issues internationally, to integrate patient, researchers, clinician information world wide.

You can help!
The Internet is so immense it can easily overwhelm you with good and bad information. On this site SMDI (I) wants to highlight, with your help, unbiased, non-technical disability/disorder information for muscular dystrophy and allied disorder patients and organizations around the world.

Since the Internet is such a large place it is impossible for us to keep up to date with all the pertinent non-technical information regarding the disorders. You can help make the Internet road to good disability/disorders information easier for yourself and fellow traveler's by, when you find articles and information you feel of value, please pass this on to us via e-mail or ordinary mail service, with the relevant web site address etc. If we use these articles we will credit you with finding them as well as the source of the article

Please check 'things we don't do'. To share this information, we are starting on this site SMDI online.

MUSCULAR DYSTROPHY and ALLIED DISORDER LINKS
For a list of all disorders, go to: http://www.mdasa.org.au/list.htm

www.yahoo.com
www.excite.com
www.go.com
www.google.com
www.lycos.com
DUMCL Online : www.mc.duke.edu/mclibrary/

A very good, premier site for all muscular dystrophies and allied disorders is: http://www.mda.org.au"

DUCHENNE and BECKER MUSCULAR DYSTROPHIES

http://www.musculardystrophy.org/start/home.html"

http://www.mdi.ie/index.html

http://disability.ucdavis.edu/

http://users.neworld.net/woliver/md.html

DMD Information Network
Duchenne Parent Project: http://www.parentdmd.org

F.S.H. - FACIOSCALPULOHUMERAL MD

http://www.familyvillage.wisc.edu

http://www.ama-assn.org/home.htm

http://pandora.med.yale.edu/neurol/CNeurophysiol/FSH.html

LIMB-GIRDLE MUSCULAR DYSTROPHY

http://www.dmd.nl/nonciuk.html

http://www.mdausa.org/disease/lgmd.html

MYOTONIC MUSCULAR DYSTROPHIES

http://www.familyvillage.wisc.edo/lib_myotonic.htm

http://www.emory.edu/WHSC/GENETICSLAB/dna/myotonic.htm

http://www.myotonicdystrophy.com

CONGENITAL and FUKUYAMA TYPE MUSCULAR DYSTROPHY

http://www.muscular-dystrophy.org

OPHTHALMOPLEGIC MUSCULAR DYSTROPHY

http://www.span.com.au/muscdyst/services.html

OCULOPHARYNGEAL MUSCULAR DYSTROPHY

http://www.mc.duke.edu/mclibrary/

http://www.mdausa.org/disease/index.html

EMERY - DREIFUSS MUSCULAR DYSTROPHY

http://www.mdausa.org/disease/edmd.html

LATE ONSET - TAY-SACHS DISEASE

http://www.mda.org.au

OTHER PEOPLE WITH MUSCULAR DYSTROPHY

http://www.mda.org.au/services/mdcontac.html

To learn more about the world's MDA's go to:

E.A.M.D.A. Members

European Alliance of Muscular Dystrophy Associations: http://www.sonnet.co.uk/eamda/index.html

W.A.M.D.A. - World Alliance of Muscular Dystrophy Associations

http://www.mdasa.org.au/wamda.htm

MUSCULAR DYSTROPHY and ALLIED DISORDER LIST
Go to: http://www.mda.org.au/general/disorder.html for a more extensive list of these following disorders and specific information and links to other related sites.

Muscular Dystrophies:

  • Duchenne MD (Pseudohypertrophic) & Becker MD
  • FacioScapuloHumeral MD (Landouzy-Derjerine)
  • Limb-Girdle MD
  • Congenital MD
  • Fukuyama MD
  • Opthalmoplegic MD (Kearns-Sayre Syndrome)
  • Distel MD
  • Muscular Dystrophy of Late Onset
  • Ocular MD
  • Oculopharyngeal MD
  • Emery-Dreifuss Dystrophy
Myotonic Dystrophies:

  • Congenital Myotonic Dystrophy
  • Myotonic Dystrophy (Steinert's Disease)
  • Myotonia Congenita (Thomson's Disease)
  • Paramyotonia Congenita
  • Chondrodystrophic Myotonia (Schwartz-Jampel)
  • Pseudomyotonia
  • Neuromyotonia (Issaacs)
Spinal Muscular Atrophies:

  • Motor Neurone Disease (ALS)
  • Severe SMA Type 1 - Infantile Progressive Spinal Muscular Atrophy (Werdnig-Hoffman Disease)
  • Intermediate SMA Type II
  • Mild SMA Type III - Juvenile Progessive Muscular Atrophy (Kugelberg-Welander Disease)
  • Adult SMA
  • Adult Progressive Spinal Muscular Atrophy (Aran-Duchenne Type)
  • X-Linked Bulbospinal Neuropathy (Kennedy's Syndrome)
Inflammatory Myopathies:

  • Polymyositis
  • Dermatomyositis
  • Juvenile Dermatomyositis
  • Inclusion Body Myositis
  • CIDP (Chronic Inflammatory Demyelinating Peripheral Neuropathy)
Mitochondrial Myopathies:

  • Mitochondrial Disease
Diseases of Peripheral Nerve:

  • Guillain Barre Syndrome
  • Peroneal Muscular Atrophy (Charcot-Marie-Tooth Disease) (CMT)
  • Hypertrophic Type III - Dejerine-Sottas Disease
  • Friedreich's Ataxia
  • Tomaculous Neuropathy
Diseases of the Neuromuscular Junction:

  • Congenital Myasthenic Syndromes
  • Myasthenia Graves - Juvenile & Adult
  • Eaton-Lambert (Myasthenic) Syndrome
Metabolic Disease of the Muscles:

  • Carnitine Deficiency
  • Carnitine Palmityltransferase Deficiency
  • Myoadenylate Deaminase Deficiency
  • Periodic Paralysis
  • Phosphoglycerate Kinase
Sub Group - Glycogen Storage Disease:

  • Type I - (Von Gierke's Disease)
  • Type II - Acid Maltase Deficiency (Pompe's Disease)
  • Type III - Debrancher Enzyme deficiency (Cori's or Forbe's Disease)
  • Type IV - Brancher Enzyme Deficiency (Andersen)
  • Type V - Phosphorylase Deficiency (McArdle's Disease)
  • Type VI - Phosphfructokinase Deficiency (Tarui's Disease)
Congenital Myopathies:

  • Central Core Disease
  • Mini / Multi Core Disease
  • Nemaline Myopathy
  • Myotubular (Centronuclear) Myopathy
Periodic Paralysis:

  • Hypokalaemic
  • Hyperkalaemic
  • Malignant Hyperthermia (Hyperpyrexia)
  • Idiopathic Myopathy
  • Benign Congenital Hypotonia (formally called Amyotonia Congenita)

Home Page
 Newsletters
 SMDI Online
 Membership and Comments
 About Us
 Guest Book
 e-mail.gif
Contact Us


This Web Site was produced by;
"WelScot Consulting Services"
Questions and/or comments regarding this web site.
Send e-mail to:WebMaster.