SMDI International


Welcome
to the
Society for Muscular Dystrophy Information International

P.O. Box 479, Bridgewater, Nova Scotia, Canada B4V 2X6
Tel: (902) 685-3961 Fax: (902) 685-3962
e-mail: smdi@auracom.com

The Society for Muscular Dystrophy Information International (SMDI(I)) is a worldwide organization by and for those concerned with Muscular Dystrophy or the Allied Disorders/Disabilities, also referred to as Neuromuscular disorders (NMD's), Which is a general term used to identify a group of over 50 diseases affecting the bodys motor unit (nerve and muscles).

Whether the problem originates within the motor nerve cell, the nerve, or the muscle, the most common expressed symptoms are varying degrees of progressive muscle weakness and wasting. Symptoms can be from mild to severe with a shortened life expectancy.

SMDI International was founded in 1983 by James and Linda Dobson. James has Myotonic Muscular Dystrophy. The Society was formed to provide non-technical international information to help people help themselves by reducing the national and international isolation of people and organizations concerned with Muscular Dystrophy or the Allied Disorders/Disabilities.

Since 1987/88, the SMDI International has published Access-Able Information and the SMDI International Newsletter featuring all kinds of helpful information and interesting topics regarding the disorders and disabilities, also highlighting the many organizations for these disorders in numerous Countries.

Membership in SMDI International is open to all those who have or are concerned with Muscular Dystrophy or the Allied Disorders. To join us just e-mail. phone or write us with your name and address printed clearly, and please tell us if you have a disorder, or are interested for a family member or friend. Please sign our Guest Book.

We publish in the Society newsletters a column called Neuromuscular Disorders OnLine by James Dobson. This column introduces you to www/internet sites, getting connected to the internet, possible problems and concerns etc; Information believed to be helpful and informative particularly for people with disorders or disabilities causing health problems. All of these previous articles are available from SMDI (I).

There are some things we don't do, but we will welcome you with open arms as a new member. We'll listen to you, refer you when possible to organizations concerned with your muscular dystrophy or allied disorders and tell you about health resources on-line and off-line or via the society's semi-annual newsletters.

Why not check out James and Linda's SMDI Online, for updates on health and disorder sites and articles.
We operate only through the generosity of those who donate to us. The average annual donation to receive SMDI (I) newsletters is $25.00 (Can) per year for individuals and $35.00 (Can) per year for organizations.

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